Tuesday, November 2, 2010
This morning I would have even taken the rabid bird over what I got. Adam woke up early and was in the shower, and C and I were snuggled in our beds still sleeping in the cold house. (We left the heat off last night and it got a little chilly.) All of the sudden I heard the smoke alarm start blaring in the hall outside our rooms. So, so loud...I swear I can almost still hear it. I jumped straight out of bed, and if the adrenaline from the alarm wasn't enough then the blast of cold air from throwing off my blankets gave me just what I needed to go racing out of our room.
As soon as I got to the hallway I could see the smoke, but I quickly determined our death wasn't imminent. Apparently, Adam had kindly started the fire in the living room when he got up to warm up the house...not knowing that last night I closed up the flue to keep out the cold air. So instead of the smoke being pulled up the chimney it just made its way through the house.
I started batting at the smoke alarm with a blanket, but being vertically-challenged I wasn't quite making it. After a few jumps I finally got the thing to shut off, but being in my half-asleep stupor it didn't occur to me that if I didn't stop it at the source the problem would continue. After a few off-and-ons of the alarm, I finally clued in to what was going on and went to shut off the fire.
About this time Adam finally heard the alarm in the shower and came out less-than-fully dressed to make sure we were all okay and take a few swats at the smoke alarm himself. C was also obviously awakened by the alarm and was yelling at us from his behind the door in his bedroom, the door I didn't want to open to let smoke in his room...unfortunately a week or two ago was "fire safety" day at school, so he was pretty freaked out.
A few minutes later we finally got ourselves together and got everything shut off, got dressed, and were snuggling on the couch with the doors open sending smoke out and 30-degree air in. Now I think I still smell like smoke and my toes are frozen, but I believe the smell is out of all the rooms in the house. And, as Adam said, at least we know the smoke alarm is working just fine.
Saturday, October 30, 2010
So I actually laughed out loud. And then I felt much better. I'm really not sure if he's a genius or going insane...all I know is if that's insanity it's making me smile and I wanna be wherever he is.
Monday, October 25, 2010
Thursday, July 22, 2010
This is what happened...we have been working on getting C a mobile stander. In case you don't know what that is it is basically a manual wheelchair but you are in standing position instead of seated, which is much better for bones/muscles/breathing. He had a mobile stander before and could push it short distances like around a room or two, but not at....say the zoo. It has been in the works for months now, but we are still trying to get the right documentation to submit to insurance for prior authorization.
We have been anticipating this for a long time. We purposely found a home with wood floors and very low profile carpeting so it would be better for him and he could use it some to get himself around the house. Since he can't crawl anymore, he now just bum scoots around as far as he can which isn't always as far as he needs to go.
So, the other weekend Adam decides we need to clean out the garage--the last big stronghold of unpacked things. I reluctantly agreed, though I was really glad we did it once we were all through. About halfway through, I noticed our old manual wheelchair in the corner. Our First Steps physical therapist had given this to us as a donation from another family when C was about two and a half. It has all its parts, but has been well loved. When we initially got the chair, we put C in it but his little arms were too short to really get a good push in the wheels. So in essence it was a glorified stroller, but we wanted to have it for a backup in case the power chair was in the shop and he was too big for a stroller.
So there I am, staring at it collecting dust in our garage, and it occurs to me that the last time he tried that chair was a year and a half ago, and his arms are bound to have grown since then. And if he can push the mobile stander wheels, he can push the wheelchair wheels. I wish I had better words to explain my feelings at that moment, but "duh" seems all that is really appropriate. I cannot believe it never occurred to me to let him try it!!! So we pulled the chair into the house and wiped that baby down with Clorox wipes, and put C in it.
And what did he do? Started pushing himself, albeit slowly, around the house. He was so, so happy. He drove himself all the way into the kitchen and said, "Mom, I'm gonna get myself a snack" and when I walked around the island, he had pulled the lower cabinet door open and was just leaning up with an orange bag of goldfish in his hands. And then he just wheeled away like it was nothing and it happened every day and started stuffing his face. And I cried. He GOT HIS OWN SNACK!! I know I'm such a softy, but I am so proud of my sweet little boy and his strength...not the strength of his muscles, but the strength of his heart and his desire to grasp for whatever independence he can get, even when it's hard to do.
Wednesday, June 30, 2010
So since I haven't blogged in forever, I thought I'd post a few pictures of some cooler days earlier this year. I saw these when I was finally able to load what was in my camera, and believe me--with this heat wave I am longing for these days to return. (C always says "bemember" instead of "remember" so we've all taken to saying it, too.)
C is the one on the left. You'll have to excuse his snowman-like appearance...it was pretty cold that day and I got a little paranoid about him being too chilly playing in the snow with Dad. I can't believe how much snow we got-this doesn't even show the half of it. At this point we only had enough for a little-boy snowman.
Monday, June 28, 2010
So anyway, now I'm over my anger and I've decided to start blogging again. Now I'm excited to see if I actually follow through. :)
Friday, February 26, 2010
It was the fall of 2002 and I had just graduated from BYU. I was kind of exhausted with relationships, working on getting over someone I couldn't let go of and someone I couldn't hold on to. I was planning on going to graduate school, but after much prayer I decided to take a year off and work. I met an awesome friend, Kristen Curran, and we almost immediately became inseparable.
On October 26th, we decided to attend a young single adult activity our church was having at a church member's farm. We all sat in a circle around a campfire and introduced ourselves. I have lived in this area since about 13 so most of the people I already knew. But one stood out--this tall, attractive guy who was talking to an old friend. I assumed they were probably there together, so when he got up and introduced himself as being a member of our church and having lived here since he was 10, I was completely surprised. But I figured he was probably too cool for our little group and sort of dismissed him. My friend, Kristen, however, was super friendly and at the end of the activity we ended up inviting him to come with our group to a haunted house (that ended up being really lame) and later to Denny's.
A few days later we all got together again, and then Adam became a permanent fixture in our group...and he and I really hit it off. I was SO not looking for a relationship, and I think it ended up being the perfect set-up for me falling deeply in love because I was completely disarmed. We became good friends and I realized I was falling in love and he was coming, too. I think the point when I really came to the realization was a time when we were sitting across the room from each other at yet another single adult activity playing games. Adam caught my eye and winked at me, and that one wink felt like the best hug I ever had.
Our first kiss was in a friend's grandparent's house...bizarre I know. Everyone else was in the basement and we both came upstairs at the same time. Adam swears he kissed me first, but that's not exactly how I remember it. He got himself really close to me (which was good because I'm not sure I would have had the guts to do that) and then since he was already there I just leaned a tiny bit closer and made it happen. I consider this as one of the best compromises of our life together. :)
Our first official date actually came after that. I know that sounds scandalous, but we just sort of got together while hanging out with friends. After we both sort of accepted we were an item, we went on our first official date to Ruby Tuesdays.
By the end of the first quarter of 2003, I think we both had a pretty good idea where we were headed. And then on a Monday in May, a day before the birth of our third nephew, Adam proposed to me while we were eating DQ Blizzards (still our favorite) at a beautiful state park near my parents' house. He had wrapped up the ring and buried it in the blizzard. When I found it he went down on one knee and asked me to marry him, and when we got back to the car he handed me some roses (that I had somehow overlooked?!? in the backseat). We initially thought we would be married in December, but once we looked at all the scheduling, we decided August would be better.
On August 9 we were married in the Louisville, KY temple of the Church of Jesus Christ of Latter-Day Saints. We have had an amazing 6 1/2 years. I can easily say that marriage is the hardest thing I've ever had to do in my life. We have had some incredible lows that I never would have predicted or expected, but also the most fantastic highs that were better that anything I could have imagined. I think I've decided that our lives are sort of like a cup that is sometimes really full or really empty. When we get married, and again with each child, our cup grows a little bigger...so that when it is empty it is truly empty and you feel it so much more than you would a smaller cup...but when it is full you have a greater joy than you ever could have known alone.
I am so grateful for my husband. He makes sacrifice after sacrifice for us, and makes me smile every day. He is a perfect father to our little boy, and is a great example to me. It is so amazing to me how well he complements me. I knew I liked him on that day back in October so many years ago, but I don't think I knew myself well enough then to even understand fully just how much he is exactly what I need. I am so grateful for a Heavenly Father who knew me well enough to place someone in my path like him and I am thrilled to be able to spend forever learning just how much fuller our cup can get.
Sunday, January 24, 2010
I feel so much more in control of my life that I did a year or two ago. C's doctors are all settled and we have regular appointments. For the most part, I know who to call for what he needs...or at least who to call to tell us where to look. But the part I still struggle with each night before I fall asleep is the part I can't control--the progression.
When C was diagnosed, he still stood and cruised along the furniture. I knew he had stopped walking out into the room but, knowing so little about SMA at the time, I thought maybe we could do intense physical therapy or maybe I could work with him a ton every day and he would be strong again and walking in no time. We have several friends and family members with children with different diseases and syndromes, and so many of them had made great leaps and bound over what their doctors thought they would physically accomplish...and I thought "My son can certainly do that too!"
And then, I learned about just was SMA was....A "progressive" disease. In January it will be two years since his diagnosis, and not only does he no longer stand independently, but he has recently stopped crawling. He has lost a ton of arm strength and falls over easily from a sitting position. The disease is such that it only gets worse--and you might be able to maintain for awhile but it is never getting better.
This is a fact that I fully understand and accept, but I won't say that personally that's not hard for me. I am a problem-solver and a fixer, and to give me a problem that can never be solved that involves one of the people I love most in this entire world is probably the greatest trial I will ever have. So at night when I'm trying desperately to go to sleep, I start thinking back about my day and wondering if I did all I could for C today and if there is anything I am forgetting. And I start to worry about his future and what strength he will lose next and how we can best help him. I never want to think or feel that things progressed with his disease and there was something I could have done to stop it, or that I didn't provide him with every opportunity. Even typing that now seems silly, because of course it is the disease and not me...but the thoughts still go through my head. And then, inevitably, I convince myself to stop thinking about it all and go to sleep because there is nothing that can be done about it right now.
So then the other day, I was eating a Dove chocolate (cause they're awesome) and there was this little quote inside, "Do not pursue the past. Do not lose yourself in the future. The past no longer is. The future has not yet come." And after a brief moment passed where I wondered if God made chocolate, I was thankful to Dove for giving me just what I needed to hear. And I started thinking about that word "progression." Back in History class the word always seemed to have a much more positive connotation and the teacher was always using it to describe the invention of the printing press or the railroad spanning the country. So maybe I was thinking about it all wrong. Maybe if C's muscles pull off some backward progression--well that's their loss. You can go back to thinking the world is flat, but it won't do you much good. But my son can still have an amazing and overwhelming amount of positive progression in his life. He is very intelligent and compassionate, and I know he will accomplish much. And someday soon our family too will progress, and C will have a new brother or sister we will love just as much who will be a shining example to him and a best friend.
So today I choose to embrace progression and be thankful for it, so that I might teach my children might find happiness in each day, and the great amount of happiness that is to come. And maybe eating a few extra chocolates isn't such a bad idea, either.
And finally, we very sadly forgot our camera when we went to Adam's parents' house for Christmas dinner. What was unique about our Christmas there? Hmmm...oh I know. I was passing out presents to everyone in a room full of about 18 people, and when everyone but Adam's sister, Beth, was absorbed in opening gifts I started to do ballet moves behind the Christmas tree. Not that I know ballet, but it was just hilarious that I was standing in the middle of the room and no one was noticing (except Beth who I wanted to laugh). That was slightly embarrassing, but said in keeping with the theme.
There were many other unique things about this Christmas, but as usual it was a wonderful few days and a perfect celebration of the birth of our Savior. And C is already making a list for next year. Why just yesterday he saw a commercial for a hair straightener on TV and told me I needed to put that on my Christmas list. I wonder what he is really trying to say.
Friday, January 1, 2010
The weather was absolutely gorgeous!! The day we flew in it was in the high 60s, and every other day it was right at 79/80 degrees. Very, very nice considering I left 30 degree weather and I love me some flip flops. We got pedicures, went out to some scrumptious restaurants, and shopped and shopped. And Lynnie and I made some new friends at Erin's shower! And most importantly, we talked and talked and talked. There are few people I enjoy talking to more in this world than those girls. It was just what I needed to try to make it through another year.