Tuesday, October 21, 2008
Monday, October 20, 2008
Today I decided to brave the Kosair Children's Hospital lab once again...and on my own with Connor for the first time. I am trying really hard to make all this stuff we have to do for his SMA a part of our normal life, and I finally decided I was strong enough to do this...and I was (!) despite us having trouble there once again. I don't even know how many times we've been there, but our most recent experience before today hadn't been the greatest...we had to do blood and urine labs (urine from a barely 2 year-old...that was fun) as well as an X-ray, and for some reason the lab couldn' t read the doctor's orders for the bloodwork (I could...and I don't work in a lab everyday...hmmmm), so we were told to get a new order and drive all the way back there again another day. So, today I decided to venture out and give it a shot. This is Connor in his carseat--he was so happy I decided to take a picture...but little did he know the fate that awaited him. We ended up staying in the lab waiting room for a little over 2 hours, while the lab people tried to get ahold of our neurologist and see if she really wanted him to have the same labs done as he had in February. (Hello--my son has a progressive disease so things are going to change. But no one listens to me. I'm just the mom.) They had a big "No Food or Drink" sign posted, but after two hours I just gave up and decided if they were going to kick me out for giving my child a cracker when it was an hour and a half past lunch then they could go ahead and do it because we were ready to go. Finally, we got to go back and have the blood draw and finger stick, and my sweet boy didn't even cry a tear...probably because he was staring the whole time at the big jar of suckers he was going to have two of when we were through. I just pray the results actually get back to the doctor in Cincinnati.
Thursday, October 16, 2008
JOBS I'VE HAD--
1. Sears Teleservice (i agree with Shannon--never again!)
2. BYU Takeout Catering
3. Administrative Coordinator (aka main secretary)
4. Insulin Pump Director
4 MOVIES I'VE WATCHED MORE THAN ONCE--
1. Sabrina (the new version with Harrison Ford)
2. Pride & Prejudice (6 VHS version)
3. Return to Me
4. So I Married and Axe Murderer
TV SHOWS I WATCH--
1. The Office
3. Gossip Girl (yup, I'm admitting it)
4 PEOPLE WHO EMAIL ME REGULARLY--
3. Adam again (we email back and forth like 6 times a day...I am totally going to get him fired)
4. Renee (Connor's PT)
4 OF MY FAVORITE FOODS--
1. Mint Chocolate anything
2. Pizza Hut breadsticks
4. Adam's mom's spaghetti sauce
PLACES I'D LIKE TO VISIT--
2. my grandma's house (again soon)
4. a cruise anywhere
4 people I tag:
2. Erin (get a blog!!)
3. Scott & Becca
Tuesday, October 14, 2008
You have to register to use it, but it's really fun...and better than triangle eyes, triangle nose, and jagged teeth.
Monday, October 13, 2008
Subject: Wonderful Qualities. List every member who lives in your home. Include 5 wonderful qualities each member holds.
The Catch: You must include yourself.
Why: It's easy to just go about each day and forget to be grateful.
Okay, so this is a little easier for me than some of you cause it's just the three of us. (Laura--you obviously have too much time now that you're not the primary president anymore...but as usual, your idea is very cute.)
1. Forgiving...definitely #1. Heavenly Father blessed me with a husband that was quick to apologize, cause He sure knew I'm not, even though it is usually my fault.
2. Good sense of humor...even if we weren't attracted to each other in any way, we would still be best friends because he makes me laugh every day (today he called me 30 minutes after he left for work just to pretend to be this dorky politician and ask for my vote)
3. Wonderful Father...I am continually impressed with all he is willing to do for our little boy.
4. Tall (6'4'), Dark (hair and skin--no sweetie, you aren't pale, you're Italian so that's not possible), and Handsome
5. Good Friend...not only is mine, of course, but I really admire all the things he does for his friends and how he is a great example of friendship
1. Compassionate...my mom always taught me that other people are more important than ourselves and to put others' feelings first
2. Good Cook...okay, maybe just for Adam who eats everything (even bad tasting things)
3. Organized...I am a fanatical list-maker
4. Loyal...I am glad to do anything to help a friend, and I want to keep friends for forever if possible
5. Silly...ask me how many ridiculous songs I (and Alyssa, Geneil, Anna, Erin, Mary...and soon Connor) know, and do not ask me to re-create all the crazy things I've done to make Connor laugh.
1. Strong...he may not be physically strong, but no matter where or how he falls he almost never cries and is so, so brave
2. Observant...he constantly talks about the world around him and what he thinks about it, and helps me notice more of the good in everyday things
3. Ticklish...nothing makes me happier than tickling him, and apparently it makes him happy too cause he always says, "do again"
4. Compassionate...after throwing his toys against the wall, he always picks them up and says, "Kiss better"
5. Stubborn...yes, this is a great quality! It take a lot of stubbornness to stick to something you know is true even though everyone else thinks otherwise. I hope he always stays this way.
Saturday, October 11, 2008
On Saturday, after we were recovered from our little bout with illness (sorry, no pics of that), we took a trip to Gallrein Farms here in Shelbyville.
We went to the petting zoo and got to see a goat up close (our second experience with goats--after John & Lynnie's), but the sheep were a little loud so Connor held Daddy's hand. They had a big red tractor, which he loved, and about a million pumpkins.
Adam (who opted out of shaving for this vacation) verified the accuracy of their measuring tools, while I made friends with a nice witch. Then we hopped on the hayride for a trip out to the pumpkin patch.
Tuesday, October 7, 2008
p.s. We decided to go with the giraffe costume. He has a new thing with giraffes--with the zoo giraffes, the giraffe from the carousel (see picture below), and the wooden toy giraffe Grandpa brought back from one of the Europe trips. I'm sure some pictures of it will show up here soon.
Saturday, October 4, 2008
I have to say that she was one of those people you meet in life that you feel blessed to have known. She was amazingly resilient...she should have left us 10 times before but I think she and her body were just too stubborn to give in to anything until she was ready. But that is what you'd expect from a nurse that worked on her feet every day right up until her baby was born. The first night I met her at Adam's parents' house, I thought for about 2 minutes that she must really not like me from a comment she made in my direction....It turned out she was actually making a joke to the cat on the couch over my shoulder! And that's the way she was--quick witted and always making everyone in the room laugh. I never talked to her without coming away feeling a little better about my problems. I am so glad Connor was able to know her, even if just for a little while. I am sure there was a crowd of people waiting for her on the other side with big smiles on their faces, and I know someday she'll do the same for us.
Wednesday, October 1, 2008
Well, it didn't. And it got worse. And then I spent the next 20 minutes, including the drive back to the mission home, trying to convince myself I did not have another kidney stone. But, anyone who has had one knows that the pain will quickly convice you otherwise. By the time we got there I was in enough pain I was breathing heavier and I kept getting hot then cold. So I called Adam to come get me and tried to get a hold of my mom to come get Connor. I had to just sit in my van and wait for them, and unfortunately (for me at the time) there were about a hundred super friendly, chatty missionaries milling about that all wanted to talk to me about what was going on...which was the very last thing I wanted to do. They were helpful and tried to give me suggestions, and finally most of them went away. I thought I might actually be able to suffer in peace then, until suddenly this big group came walking down all together from the mission home. I recognized an elder that once served in our ward and he came up to me first and said, "Sister DeLuca, I have some missionaries here that would like to give you a blessing."
And they did--right there in my van. Then Jeremy Call, my new hero, came over to entertain Connor with his magical cell phone. About 20 minutes later, I felt the stone move and the pain dulled to a minor ache. I later found out those missionaries that did the blessing were all about to go home, including one returning to Albania. Sister Knight (my now new best friend from the mission home) said missionaries about to return home are just full of the Spirit and completely in tune. It must be true because they blessed me that the pain would subside, and that is exactly what happened--and fast.
No more Sprite for me. :(