The good news is that Connor is amazing in his mobile stander. (In case you don't know what a mobile stander is, it is basically a stand-up wheelchair. It kind of looks like chariot that he is strapped in to where he propels the wheels himself.) I took him to the library the other day and the children's librarian was totally amazed that kid who wasn't even 2 yet could maneuver it like he did. And that isn't even something we really taught him--you can't teach him much of it at that age. He just figured it out with a little practice. This disease doesn't affect his brain at all and that child is as smart as can be.
Tuesday, August 12, 2008
As many of you know, we are in the process of trying to sell our house. We realize this may not be the most advantageous time for that, but we're still trying. The reasons for doing so are that gas is ridiculously expensive and commuting from Shelbyville to Louisville has gotten out of control for Adam, it is costing a lot for Connor and I to run back and forth for doctor's visits, etc., and finally that our little house is rapidly developing into an equipment jungle. Connor now has a therapy bench, therapy bands, gloves with wrist weights, short leg braces, long leg braces, a walker (aka his "car"), a mobile stander (aka his "truck"), a loaner wheelchair, arm crutches, and an exercise therapy ball. Unfortunately that larger equipment does not fold up so it just kind of hangs out in our living room a bit so we don't trip over it in his room in the night. It's not really working out for us right now. And the sad part is we are only going to get more from here...so we are looking for a house with a basement for storage.
at 2:38 PM