Today I decided to brave the Kosair Children's Hospital lab once again...and on my own with Connor for the first time. I am trying really hard to make all this stuff we have to do for his SMA a part of our normal life, and I finally decided I was strong enough to do this...and I was (!) despite us having trouble there once again. I don't even know how many times we've been there, but our most recent experience before today hadn't been the greatest...we had to do blood and urine labs (urine from a barely 2 year-old...that was fun) as well as an X-ray, and for some reason the lab couldn' t read the doctor's orders for the bloodwork (I could...and I don't work in a lab everyday...hmmmm), so we were told to get a new order and drive all the way back there again another day. So, today I decided to venture out and give it a shot. This is Connor in his carseat--he was so happy I decided to take a picture...but little did he know the fate that awaited him. We ended up staying in the lab waiting room for a little over 2 hours, while the lab people tried to get ahold of our neurologist and see if she really wanted him to have the same labs done as he had in February. (Hello--my son has a progressive disease so things are going to change. But no one listens to me. I'm just the mom.) They had a big "No Food or Drink" sign posted, but after two hours I just gave up and decided if they were going to kick me out for giving my child a cracker when it was an hour and a half past lunch then they could go ahead and do it because we were ready to go. Finally, we got to go back and have the blood draw and finger stick, and my sweet boy didn't even cry a tear...probably because he was staring the whole time at the big jar of suckers he was going to have two of when we were through. I just pray the results actually get back to the doctor in Cincinnati.
Then I got home and saw this picture I had forgotten about, and laughed out loud, and my whole day changed for the better. Adam has been out of town at his grandmother's memorial, and it will be good to have him home.